Suck it Seizures

We spent Monday down at Dartmouth having an EEG and mostly just driving back and forth.  Evie had the EEG, I did the driving, and Maxine and my Mom kept us in good company.

Evie was her usual trooper self–even though having her head/hair touched is her most disliked situation.  She is constantly being poked and prodded and examined; yet, she just keeps on keeping on with very little complaint.

So her last EEG revealed seizure activity every ten seconds or so.  So we decided to try a new medication.  The new medication is not without side effects–tremors and bruising in Evie’s case.  But….


But.  It is working!

Her EEG is still abnormal (with discharges from both temporal lobes and some generalized discharges for you medical nerds).

But in the words of Dr. Holmes–it is 95% better than the last one.

Her previous state was compared to trying to work on a computer that was being unplugged every ten seconds.  Can you imagine being interrupted every ten seconds?  And still functioning?

And my girl, Evie.  She has had all of this going on and she is sweet.  She is just so sweet and cuddly.  She is extraordinarily good-natured even though she’s had her brain scrambled every which way.

At 95% better, she is the same sweet child.  But she is more connected to her world in so many ways.

This is just totally wonderful news for my little love and I am so over the moon to write this update.

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