We spent Monday down at Dartmouth having an EEG and mostly just driving back and forth. Evie had the EEG, I did the driving, and Maxine and my Mom kept us in good company.
Evie was her usual trooper self–even though having her head/hair touched is her most disliked situation. She is constantly being poked and prodded and examined; yet, she just keeps on keeping on with very little complaint.
So her last EEG revealed seizure activity every ten seconds or so. So we decided to try a new medication. The new medication is not without side effects–tremors and bruising in Evie’s case. But….
But. It is working!
Her EEG is still abnormal (with discharges from both temporal lobes and some generalized discharges for you medical nerds).
But in the words of Dr. Holmes–it is 95% better than the last one.
Her previous state was compared to trying to work on a computer that was being unplugged every ten seconds. Can you imagine being interrupted every ten seconds? And still functioning?
And my girl, Evie. She has had all of this going on and she is sweet. She is just so sweet and cuddly. She is extraordinarily good-natured even though she’s had her brain scrambled every which way.
At 95% better, she is the same sweet child. But she is more connected to her world in so many ways.
This is just totally wonderful news for my little love and I am so over the moon to write this update.
I’ve been feeling a lot of pressure to come up with something to write on Mother’s Day. After all, this is a blog about mothering and it stands to reason that I would have some touching anecdotes or divine words of wisdom to offer on Mother’s Day, right?
As it turns out, I am fresh out of clever little ditties.
I hope a simple, “Happy Mother’s Day,” will suffice because that’s all I got.
So this has been one of those weeks…we are having tons of construction going on in the house. With construction comes the literal and figurative mess of dealing with construction. After a rotten experience with an uber shady dude and his Jerry Springeresque girlfriend, we are taking a break for a bit. We have such a long road ahead of us when it comes to remodeling this old place.
It is nice to be able to get things cleaned up and get back to life after having to babysit/keep an eye on the project for the better part of two weeks. Kind of a bummer that the weather has been pretty lousy.
So on a brighter note–you know where I am going with this. Yep, my kids. They never fail to light up gloomy days end remind me that I have it all.
So Max is still working on a step here or a step there. But she is even busier working on her comedy routine. I love her sense of humor. I have to say she is the most pleasant teether ever. Most of her teeth to date, I haven’t even known she was getting them because she just keeps on smiling. These eye teeth that are poking though, well, they’ve made themselves known. She tries to smile and be her happy little self, but night times have been tough for her. So we’ve had some days that we sleepwalk through over the last few weeks. But I think we are though the worst of it.
And then there is Evie. She’s been really fascinated with doors–specifically opening and closing them. Over.And.Over. But she has also been extra lovey dovey. She is constantly seeking out a cuddle/snuggle/hug/kiss. She just couldn’t be any easier to love. We are headed down to Dartmouth on Monday to see if her new seizure medications are up to snuff.
We’ve got a lot planned for the weekend… Looking forward to some lovely days with my beautiful family.